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Global health and climate change
2019-20 climate bushfire emergency
asylum seeker and refugee health
Climate emergency
disasters
Ebola
extreme weather events
flooding 2011
global health
NHS
NZ Election 2017
WHO
health
Healthcare and health reform
abortion
adverse events
aged care
allied health care
Australian Medical Association
cancer
cardiovascular disease
child health
Choosing Wisely
chronic diseases
co-payments
Cochrane Collaboration
complementary medicines
conflicts of interest
death and dying
diabetes
digital technology
disabilities
e-health
emergency departments and care
Equally Well
euthanasia
evidence-based issues
general practice
genetics
health & medical marketing
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health and medical research
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health ethics
health financing and costs
health reform
health regulation
health workforce
HIV/AIDS
hospitals
HRT
infectious diseases
influenza
international medical graduates
journal articles
LGBTIQ
medical marijuana
Medicare Locals
men's health
mental health
MyHospitals website
National Commission of Audit 2014
National Health Performance Authority
naturopathy
NDIS
NHMRC
non communicable diseases
nurses and nursing
oral health
organ transplants
out of pocket costs
pain
palliative care
paramedics
pathology
Pharmaceutical Benefits Scheme
pharmaceutical industry
pharmacy
Pregnancy and childbirth
primary health care
Primary Health Networks
private health insurance
quality and safety of health care
rural and remote health
screening
sexual health
social media and healthcare
suicide
surgery
swine flu
telehealth
tests
TGA
trauma
women's health
youth health
Indigenous health
#CTG10
#NTRC
Acknowledgement
cultural safety
Indigenous education
Lowitja Institute
NT Intervention
social and emotional wellbeing
Uluru Statement
WA community closures
News about Croakey
PIJ Commissions 2021
Public health and population health
#PreventiveHealthStrategy
#UnmetNeedsinPublicHealth
air pollution
alcohol
consumer health matters
COVIDwrap
environmental health
Fetal Alcohol Spectrum Disorders (FASD)
food and nutrition
gambling
Government 2.0
gun control
health communications
health impact assessment
Health in All Policies
health inequalities
health literacy
human rights
illicit drugs
injuries
legal issues
marriage equality
Media Doctor Australia
media-related issues
nanny state
National Preventive Health Agency
obesity
occupational health
physical activity
plain packaging
prevention
public health
public interest journalism
road safety
sport
sugar tax
tobacco control
transport
vaccination
violence
Web 2.0
weight loss products
Royal Commission
Social determinants of health
discrimination
education
justice
Justice Reinvestment
NBN
Newstart
poverty
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Community engagement is not just about “ticking boxes”: a caution to Medicare Locals

Croakey is hosting a discussion about how the new primary health care organisations to be known as Medicare Locals might engage their communities effectively in setting directions and priorities.

Scott White, from the Hunter Urban Division of General Practice, kicked off the discussion with this crowdsourcing call for suggestions, and Professor Helen Keleher, president of the Public Health Association of Australia, responded with this piece arguing for some “bigger picture” action that goes way beyond the remit of Medicare Locals.

Now Carol Bennett, Executive Director of the Consumers Health Forum, cautions against tokenism and ticking the boxes. Moves are afoot to develop a more empowered and effective consumer network, she says.

Carol Bennett writes:

It’s hard to disagree with many of the comments in Scott White’s post.  Yes, hospitals have for too long been the focal point of the health reform debate; yes, a more accessible and flexible health care system is essential and;  yes, community engagement is vital.

It is on this last point, however, that I would like to make some further comments. Community or consumer consultation can just be a feel-good buzz word unless it is clearly defined and more than just the tokenism that will enable the “consumer representation” box to be ticked.

For many years,  CHF has placed health consumers on a wide range of important committees and consultation bodies and despite the whole hearted commitment, knowledge and expertise of those consumers, the results (as measured by the quality of services consumers receive) have been patchy.

Individual consumers on high powered committees have had little access to support networks and training and have, at times, felt intimidated and restricted by stringent confidentiality agreements and lack of access to quality external advice.

A couple of dozen consumer advocates with a limited support base, representing the many millions who use and pay for the health system,  cannot possibly match large medical industry organisations with access to significant financial resources, specialist advice, research and secretarial support.

It has been an uneven playing field and hopefully that is about to change.

In the hurly burly of the recent election campaign a small announcement by the Health Minister, Nicola Roxon, was hardly noticed.

It’s a drop in the fiscal ocean but CHF has been given $2.9 million dollars (the annual earnings of some medical specialists) to establish a national network of trained and accredited health consumer representatives actively supported and engaged in the National Health and Hospitals Network. This consumer representative network and the associated resources will also support consumer participation in other community, state and national health policy forums.

For both Local Hospital Networks and Primary Health Care Organisations, the challenges are to really find out and understand what their communities need in the way of diverse health services, and to respond in the best way possible to those demands within their accepted budgetary restraints.

Each local area will have communities with different needs and requirements.

CHF’s aim is to identify and train quality consumer representatives and to supply the resources and back-up that these people need to ensure that the community voice is heard and acted upon.

A national network of well trained and experienced consumer health advocates, each sharing experiences, knowledge and problems, will be a powerful voice for those advocating for more efficient and responsive health care across the country.

Consumer engagement must be about more than listening to the views of communities or consumers; it must be about ensuring that health consumers have an accountable voice in decision making.

The dangers of “tick the box”,  simplistic models of consultation are that they undermine a strong, effective community voice that can add real value to improving health services.

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