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Do we need a Romantic movement in medicine? Involving patients in medical education

At its best, the practice of medicine is both an art and a science. While we continue to pursue laudable goals such as an increase in evidence-based health care, it is important to ensure we don’t lose sight of the ‘art’ of caring for patients.  In this wide-ranging and insightful piece, Dr Tim Senior draws on his experience as a GP in an Indigenous community, the philosophy of Nietzsche and the influence of the Romantic movement (among other things) to present a case for patient involvement in medical education, as part of creating a more person-centred system of health care. This piece first appeared on Tim’s blog The Influence of the Tricorder, and is reproduced here with permission. Tim writes…..

 

 

 

 

 

 

 

 

 

I have had a very interesting conversation with Anya de Longh on Twitter and commenting over on the AMS Doctor blog. She wanted to know how patients can be more involved in medical education. There have also been helpful contributions to this discussion from David Chessor, Meerat Kaur and Clare Morris. And then Anya asked “What are the biggest obstacles for clinicians in accepting teaching from patients?”

I don’t have an easy answer to this, and would love to hear other people’s thoughts. I also don’t think it’s something I can do justice to in 140 characters, as I think the answers to this questions are tied up in what we call the Hidden Curriculum – those unstated values which get acted out by doctors and medical students.

Why is something so obvious so difficult?

It does seem obvious to me that patients (and for that matter carers) should be involved in teaching doctors (and, for that matter, all health care professionals).

I don’t think there are that many people who would argue against the idea. So why is it so difficult to do?

I think there are some particular ways we have of thinking about medicine that lead us to discounting the patients’ views.

I’ll suggest what I think these are here. I don’t want to suggest that these ways of thinking are wrong – they have been beneficial in many ways – but there are other ways we need to think, too.

Medicine is thought of as a technical discipline

The way we conventionally teach and talk about medicine makes it look like it’s a technical and scientific discipline. The study of medicine becomes the study of scientific facts about diseases. This exhibits itself in traditional physiology and pathology, as well as the monitoring requirements of diseases, such as diabetes.

Eventually, all that you need to know about a disease is the numbers associated with its monitoring – so you assume that you know all about someone’s diabetes if you know their HbA1c, their fingersprick sugars, their cholesterol and their blood pressure.

The way we teach using cases which concentrate on disembodied signs and symptoms of disease, and the way we encourage “taking a history” as the extraction of facts related to a diagnosis, with any other information deemed (by the doctor) to be irrelevant – indeed, patients who concentrate too much on these “irrelevant” facts may even be deemed to be poor historians.

In our teaching, we pose clinical problems that always have an answer (and usually only one answer). We seek an objectivity that means anyone can mark the assessments.

We develop and use symptom scoring systems to reliably diagnose or calculate risk for a huge number of conditions now, and we can even use the fact that people use more emotion-laden terms for their breathlessness to diagnose their chronic lung disease.

Evidence based medicine, in its success at giving us confidence about which treatments and tests work, has resulted in an inadvertent limitation in the sort of questions it is legitimate to ask in medicine.

We are encouraged to ask “In a man aged 65 do the benefits of aspirin outweight the risks for primary prevention of cardiovascular disease?” It’s not even assumed that we might ask the man himself of course – it is posed as purely an informational question.

There are other types of legitimate questions that patients ask which the evidence has no answer for.

“Should I see my sister with lung cancer on the Central Coast next week?”

“Why do I feel so guilty about allowing my mother to go into a nursing home?”

“How can I make her love me again?”

“Who can I talk to? I feel so lonely.”

In seeking out objectivity, we have crowded out the need for the voice of the patient without even realising it.

If all you need to know about a disease is its pathology and biochemical markers, there’s no need for a patient voice.

Yes, we teach patient centred medicine, but if they know what’s good for them, they’ll fall into line with our objective evidence. Ultimately, when medicine is scientific, technical, “objective” then it is owned by us doctors, and patients don’t really need to be involved.

Solutions

I have deliberately painted an overly bleak picture. In reality, there are many doctors (including most GPs?) who practise and teach medicine entirely inclusive of the patient’s voice.

Helman, a GP and anthropologist, wrote in a classic 1981 paper about the questions that patients want answered when they see a doctor:

1. What has happened?
2. Why has it happened?
3. Why to me?
4. Why now?
5. What would happen if nothing was done about it?
6. What should I do about it.or whom should I consult for further help?

It’s apparent that only question 5 (and perhaps 1) is readily answerable by evidence based medicine. Medical schools are using the humanities – usually novels and film – to teach about the experience of being ill.

However, it’s notable that these approaches can still both be taught entirely separately from actual real patients – again, we have the capacity to go to research libraries to learn.

I have come to this in realising that our traditional objective approach doesn’t work in Aboriginal and Torres Strait Islander Health.

Where doctors (and other health professionals) need to be assessed or taught on cultural competence, Aboriginal people need to be involved in this.

In asking Aboriginal people what they want from their doctors, they do want them to know the clinical science, but they also want them to have an appreciation of their lived experience. And reading about it is OK, but just doesn’t come close to actually working in a community.

But this is what my patients wanted in Sheffield in the UK, too. Being a doctor is not just an example of applying evidence to a blank canvas. The way we teach and discuss medicine can make it seem as if it is, though.

We need to find a way of appreciating the subjective, and combining our learning of scientific skills with hearing of the experience and priorities of those living with the conditions we discuss.

I was reminded of Richard Holmes’ book The Age of Wonder, about the influence of the Romantic movement on science through the 1800s. (And also Craig Shuftan’s book Hey Nietzsche Leave those Kids Alone – possibly the best book title ever!)

Romanticism is about the power of the subjective experience. I wonder (in both senses!) if we need to recapture a Romantic movement in medicine – alongside our objective disembodied knowledge, we need a sense of the subjective experience of illness.

There are examples of patients being involved at all levels of medical student education. It does take individual and institutional goodwill, though.

Here are my thoughts on how we could do it right now.

If you are a patient

  • Take every opportunity you feel able to, to politely teach the doctors, nurses and students what you feel they should know
  • Give them and the service feedback
  • Ask around and find teachers enthusiastic to include you at the clinic, in the hospital and at the university 

If you are a student

  • Take every opportunity you can to learn from your patients
  • Ask them what they think you need to know
  • Tell your teachers how much you appreciated learning from the patients

If you are a doctor (or other health professional) involved in teaching

  • Take every opportunity to involve your patients in teaching your students
  • Ask what they’d like your students to know
  • If they want, help get them involved further with other organisations

If you are responsible for medical curricula

  • Think about how you could get patients involved in development, delivery and assessment of learners
  • Find out which individuals and groups are interested in getting involved
  • Think about how the hidden curriculum at your institution sidelines patient voices.

You will have other, better ideas. Or you might completely disagree.

I’d be interested to hear your comments below.

It’s my feeling that only by involving patients in medical education, do we help students really understand what is meant by patient centred, patient empowerment and partnership.

And we bring a little wonder and Romance back into medicine.

 

 Dr Tim Senior is a GP working in Aboriginal health and an enthusiastic blogger and Tweeter. Follow him at @timsenior

Comments 5

  1. I am loving Tim’s posts here – such a readable combination of experience, expertise and philosophical insight.

    Another good book on this subject is Paul Komesaroff’s “Experiments in Love and Death – Medicine, Postmodernism, Microethics and the Body” — a far more ponderous title than Schuftan’s, to be sure. His concept of microethics in the clinical encounter is relevant and helpful.

  2. Jennifer Doggett says:

    I totally agree Daniel – Tim is really making me think! Thanks for the book recommendation, I’ll check it out and I’m sure other Croakey readers will be interested too.

  3. Tim Senior says:

    Thanks very much for those kind words, Daniel. And thanks for the book recommendation, I’ll seek that out.
    Incidentally, there are some comments at the original posting here, too, which are interesting. http://iofthet.blogspot.com.au/2013/06/do-we-need-romantic-movement-in.html

  4. Melissa Sweet says:

    Readers may also be interested in this powerful piece by US nurse Amy Berman, re her personal experiences with an incurable disease and a system that pushed aggressive interventions rather than respecting her choices around prioritising quality of life. She concludes: “What about the millions of older Americans facing a terminal illness or chronic disease? How can they possibly stand up to the juggernaut of our health system and say, “No. I want care that focuses on my goals, care that is centered on me.” We need to make it easier for everyone to obtain care that fits their health care goals. How can we change the system and the measurement of quality to place the patient at the center? I call on everyone involved in health care practice and reform efforts to give serious thought about how we can reorient our health care system toward patient-centered care.” http://hcldr.wordpress.com/2013/06/02/june-4-amy-berman/

  5. Charles Alpren says:

    What a wonderful article, thanks Tim. All I can add is that my own experience of involving patients and stressing their perspective in teaching is always received with surprise, delight and enthusiasm by students.

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CroakeyNews
Cultural determinants of health
Digital platforms
Elections and budgets
Federal Budget 2019-20
Federal Budget 2020-21
Federal Budget 2021-22
Global health and climate change
2019-20 climate bushfire emergency
asylum seeker and refugee health
Climate emergency
disasters
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extreme weather events
flooding 2011
global health
NHS
NZ Election 2017
WHO
health
Healthcare and health reform
abortion
adverse events
aged care
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Australian Medical Association
cancer
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child health
Choosing Wisely
chronic diseases
co-payments
Cochrane Collaboration
complementary medicines
conflicts of interest
death and dying
diabetes
digital technology
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Equally Well
euthanasia
evidence-based issues
general practice
genetics
health & medical marketing
health and medical education
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Health Care Homes
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HIV/AIDS
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infectious diseases
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journal articles
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Medicare Locals
men's health
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MyHospitals website
National Commission of Audit 2014
National Health Performance Authority
naturopathy
NDIS
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pharmaceutical industry
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Pregnancy and childbirth
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Primary Health Networks
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rural and remote health
screening
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social media and healthcare
suicide
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swine flu
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TGA
trauma
women's health
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Indigenous health
#CTG10
#NTRC
Acknowledgement
cultural safety
Indigenous education
Lowitja Institute
NT Intervention
social and emotional wellbeing
Uluru Statement
WA community closures
News about Croakey
PIJ Commissions 2021
Public health and population health
#PreventiveHealthStrategy
#UnmetNeedsinPublicHealth
air pollution
alcohol
consumer health matters
COVIDwrap
environmental health
Fetal Alcohol Spectrum Disorders (FASD)
food and nutrition
gambling
Government 2.0
gun control
health communications
health impact assessment
Health in All Policies
health inequalities
health literacy
human rights
illicit drugs
injuries
legal issues
marriage equality
Media Doctor Australia
media-related issues
nanny state
National Preventive Health Agency
obesity
occupational health
physical activity
plain packaging
prevention
public health
public interest journalism
road safety
sport
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Web 2.0
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Royal Commission
Social determinants of health
discrimination
education
justice
Justice Reinvestment
NBN
Newstart
poverty
racism
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Summer reading 2020-2021
Tasmanian election 2021
Testing Croakey News category 1
The Croakey Archives
#cripcroakey
#HealthEquity16
#HealthMatters
#IHMayDay (all years)
#IHMayDay 2014
#IHMayDay15
#IHMayday16
#IHMayDay17
#IHMayDay18
#LoveRural 2014
Croakey Conference News Service 2013 – 2019
2013 conferences
Australian Centre for Health Services Innovation Forum 2013
Australian Health Promotion Association Conference 2013
Closing the Credibility Gap 2013
CRANAplus Conference 2013
FASD Conference 2013
Health Workforce Australia 2013
International Health Literacy Network Conference 2013
NACCHO Summit 2013
National Rural Health Conference 2013
Oceania EcoHealth Symposium 2013
PHAA conference 2013
2014 conferences
#IPCHIV14
AIDA Conference 2014
Congress Lowitja 2014
CRANAplus conference 2014
Cultural Solutions - Healing Foundation forum 2014
Lowitja Institute Continuous Quality Improvement conference 2014
National Suicide Prevention Conference 2014
Racism and children/youth health symposium 2014
Rural & Remote Health Scientific Symposium 2014
2015 conferences
#CPHCEforum
#CRANAplus15
#HSR15
#NRHC15
#OTCC15
Population Health Congress 2015
2016 conferences
#AHHAsim16
#AHMRC16
#ANROWS2016
#ATSISPEP
#AusCanIndigenousWellness
#cphce2016
#CPHCEforum16
#CRANAplus2016
#IAMRA2016
#LowitjaConf2016
#PreventObesity16
#TowardsRecovery
#VMIAC16
#WearablesCEH
#WICC2016
2017 conferences