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Investigating the unmet needs of children and refugees with disabilities

Marie McInerney writes:

If life as an asylum seeker or refugee is hard, what can it be like for someone with a disability?

And what level of support can they expect or hope for in Australia?

Cathy Preston-Thomas from the New South Wales Refugee Health Service painted a graphic picture of the often grim intersection between displacement and disability at last week’s Population Health Congress in her presentation, ‘Wheelchairs at the arrival gate: working with people with a disability from a refugee background’.

It has been rare, since the Nazis, to see people persecuted because of a disability, but a disability can make someone an easier target, she said, referring to forced marches in history, including by the Khmer Rouge, where those who lagged behind were shot.

Exposure to war and conflict also makes people more susceptible to disability, including greater vulnerability to diseases like the recent outbreak of polio in Syria. The breakdown of services and medical supplies in conflict and flight from war-torn areas was also more keenly felt by people with disabilities, she said.

When people with disabilities enter refugee camps, they are often the last people to get food or medical care and the first to contract infectious diseases. There is little planning for their needs, including access to schools, medical supports and bathing and camp health services tend to focus more on lifesaving medicine and stopping the spread of disease than on long-term therapy, she said.

And their resettlement options are “chronically limited”, which is where Australia’s level of care and support comes in.

In fact, until recently, people with a serious disability and their families were screened-out of Australia’s resettlement program, until the Gillard Government lifted the health requirement in late 2012. In the meantime, some asylum seekers took measures into their own hands, including coming to Australia by boat.

At the end of 2014, Preston-Thomas said, there were 268 asylum seekers with disability living in Australian detention facilities, including 49 children: 114 were detained in our offshore facilities at Nauru or Manus Island, including five children.

According to the Immigration Department, their disabilities include hearing or vision impairment, multiple sclerosis, cognitive and developmental disabilities, and amputation. The numbers do not include people who are disabled by mental illness, she said.

See the Australian Human Rights Commission’s Forgotten Children inquiry also, which identified the following disabilities in children: hearing and vision disabilities, autism conduct disorder, reactive attachment disorder, congenital heart disease and muscular dystrophy, epilepsy, spinal deformity and congenital kidney anomaly.

Human rights abuses

Earlier this year disability organisations from across Australia called on the Government to release people living with a disability from onshore and offshore detention centres.

Their statement also makes grim reading, listing their main concerns as:

  • danger posed by the detention environment, as demonstrated by numerous incidents of assaults, sexual assaults and self-harm involving children and adults
  • limited paediatric care and therefore limited ability of staff to identify disability in a detention environment
  • lack of access to aids and equipment including people having their medication and equipment (such as hearing aids) confiscated and destroyed when they first arrive by boat, and little access to mobility or communication aids, or stimulation activities
  • denial of essential specialist services due to remote location of centres, including lack of multi-disciplinary, specialist assessments for speech therapy, behaviour therapy, physiotherapy, or occupational therapy.
  •  denial of the right to access effective communication through the lack of access to diverse language and communication supports, including sign language
  • profoundly negative impacts on the mental and emotional health and development of children
  • impact on carers, who carry the burden of care in exceptionally stressful conditions with limited support (it said the prison-like environment makes preparing foods, keeping loved ones clean, and moving people around the centre incredibly difficult – for example only two of eight centres in Australia have an accessible meal preparation area for parents to use at any time).
  • denial of education, which is fundamental to all children’s development.

But services have also struggled to meet the needs of refugees with serious disabilities within the Australian community.

Preston-Thomas said the changes to disability screening in Australia’s resettlement program had seen about 50 refugees with disability arriving each year in New South Wales.

The majority are Iraqis who had fled to Syria and had now fled again, and they arrive with a range of disabilities, including Down syndrome, autism, cerebral palsy and catastrophic brain injury.

Almost all, she said, arrived with a carer (usually a parent or sibling), most had multiple disabilities and some had other members of their family also with disabilities.

Unlike those who arrive under the settlement program, asylum seekers living in the community on bridging visas or those refugees given temporary visas have limited support and are unlikely to be eligible for specialist disability services.

It has been, she said, a big challenge for support groups like the NSW Refugee Health Service, where few refugee specialists in health or settlement had experience working with people with a disability. “It was unchartered, complex territory using a language of social disability rather than medicine,” she said.

Challeges

There were also few lessons from other states, she said, with very little Australian research that intersects both disability and refugee populations, and with international research largely focused on health care in countries of first asylum.

And the costs are high in not meeting needs: treatment is delayed, conditions can be exacerbated, and delays impact on the individual, services, and carers who face social isolation without support.

“The main issue was this group (of refugees) did not fit easily into the system,” she said. Disability services were not set up for people arriving out of the blue, such as needing to give assessments of adults with intellectual disabilities, and refugee services were not set up for addressing issues like access to schools for children with disabilities.

“We learnt as we went: tweaking our model of care to strengthen case coordination, developing links to the disability sector, and collaborating,” Preston-Thomas said. “We up-skilled our staff about the disability services fast and developed some great champions in the disability sector. We also strengthened case coordination between agencies. These partnerships are invaluable to negotiating the system and coordinating care.”

The National Disability Insurance Scheme is likely to shake up the policy context some more, but there are with lessons that can be learned from its implementation in trial areas, she said.

Diversitat’s report into the trial in Barwin suggested those clients with limited understanding of the disability sector will need a lot of support, amid concern that only 2 per cent of people given NDIS plans were from CALD backgrounds. “It does not bode well for a group that is already socially isolated,” she said.

But she said the NDIS does at least offer an opportunity to ensure that their needs are included in planning through CALD reference Groups, through champions at health and disability service organisations. “We need to continue to try to make health providers and planners aware of their needs.”

***

Bullying of children

Other presentations also focused on disability issues – and were a welcomed inclusion to the program.
inclusion

Professor Anne Kavanagh, Head of the Gender and Women’s Health Unit at Melbourne’s Centre for Health Equity asked: do children with disabilities experience more bullying?

Kavanagh said children with borderline intellectual functioning – who may not traditionally have been considered to have a disability but may have troubles with learning across a range of domains – are often overlooked in research or policy.

She said her study, based on data on the Longitudinal Study of Australian Children, provides the first population-based prevalence estimates of school-based physical and social bullying in disabled and non-disabled children and between children with and without borderline intellectual functioning.

It found:

  • All forms of bullying were more common among children with disabilities and with borderline intellectual functioning than among those without.
  • The strong evidence was for social bullying. Children with disabilities were 29 per cent more likely to experience social bullying than non-disabled children. Children with borderline intellectual functioning were 24 per cent more likely to experience social bullying than children without borderline intellectual functioning.
  • Children with disabilities who live in disadvantaged households are at particular risk of social bullying.
  • School-based bullying program must concentrate on reducing bullying against children with disabilities.
Concerns about violence

Another presentation from the Gender and Women’s Health Unit said there was international evidence that people with disabilities are more likely to experience interpersonal violence than people without disabilities, but that little is known about the situation in Australia.

The project analysed data on 17,000 Australians from the 2012 Personal Safety Survey, the first time disability information was collected, to compare rates of physical assault, sexual assault, partner sexual and physical assault, partner emotional abuse and stalking/harassment between people with and without disabilities for women and men.

Kavanagh said it reported the first Australian population-based estimates of experiences of interpersonal violence of people with disabilities showing that both women and men with disabilities experience high levels of violence.

It found:

  • Prevalence of all forms of violence was more common in people with disabilities than same sex non-disabled peers when measured in the last 12 months and from the age of 15 years.

Based on experiences reported from the age of 15 years, it found:

  • 28 per cent of women with disabilities and 15 per cent of women without disabilities reported sexual violence; 25 per cent of women with disabilities and 13 per cent without disabilities reported partner violence and 35 per cent of women with disabilities and 19 per cent of women without disabilities reported emotional abuse.
  • 53 per cent of men with disabilities and 46 per cent of men without disabilities reported physical violence. Men with disabilities also reported higher levels of sexual violence and partner violence than men without disabilities but lower levels than women with disabilities.

“This is a serious human rights and public health issue that requires urgent attention,” Kavanagh said.

Job quality for people with disabilities

The conference also heard there was growing policy interest in disability employment, particularly with the financial viability of the National Disability Insurance Scheme (NDIS) premised on it narrowing the employment gap between people with and without disability. That had prompted a study that looked at the quality of jobs on offer for people with disabilities as a potential influence on uptake.

Tony LaMontagne from Deakin University applied measures of pscyhosocial job ‘adversity’ – high job demands, low job control, high insecurity, low pay equity – to examine the association between disability and job quality, adjusting for age, sex, education and job type.

It found that those working with any disability showed roughly 25 per cent higher odds of reporting one or more adversity at work – which was consistent across impairment types with the exception of intellectual/developmental disability.

“This may have negative health consequences and may make employment less sustainable for people with disability, potentially worsening existing health inequalities as well as constituting a disincentive to labour market participation for people with disability,” his study found.

• Track Croakey’s coverage of #pophlth2015 here.

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Cultural determinants of health
Digital platforms
Elections and budgets
Federal Budget 2019-20
Federal Budget 2020-21
Federal Budget 2021-22
Global health and climate change
2019-20 climate bushfire emergency
asylum seeker and refugee health
Climate emergency
disasters
Ebola
extreme weather events
flooding 2011
global health
NHS
NZ Election 2017
WHO
health
Health workers
Healthcare and health reform
abortion
adverse events
aged care
allied health care
Australian Medical Association
cancer
cardiovascular disease
child health
Choosing Wisely
chronic diseases
co-payments
Cochrane Collaboration
complementary medicines
conflicts of interest
death and dying
diabetes
digital technology
disabilities
e-health
emergency departments and care
Equally Well
euthanasia
evidence-based issues
general practice
genetics
health & medical marketing
health and medical education
health and medical research
Health Care Homes
health ethics
health financing and costs
health reform
health regulation
health workforce
HIV/AIDS
hospitals
HRT
infectious diseases
influenza
international medical graduates
journal articles
LGBTIQ
medical marijuana
Medicare Locals
men's health
mental health
MyHospitals website
National Commission of Audit 2014
National Health Performance Authority
naturopathy
NDIS
NHMRC
non communicable diseases
nurses and nursing
oral health
organ transplants
out of pocket costs
pain
palliative care
paramedics
pathology
Pharmaceutical Benefits Scheme
pharmaceutical industry
pharmacy
Pregnancy and childbirth
primary health care
Primary Health Networks
private health insurance
quality and safety of health care
rural and remote health
screening
sexual health
social media and healthcare
suicide
surgery
swine flu
telehealth
tests
TGA
trauma
women's health
youth health
Indigenous health
#CTG10
#NTRC
Acknowledgement
cultural safety
Indigenous education
Lowitja Institute
NT Intervention
social and emotional wellbeing
Uluru Statement
WA community closures
News about Croakey
PIJ Commissions 2021
Public health and population health
#PreventiveHealthStrategy
#UnmetNeedsinPublicHealth
air pollution
alcohol
consumer health matters
COVIDwrap
environmental health
Fetal Alcohol Spectrum Disorders (FASD)
food and nutrition
gambling
Government 2.0
gun control
health communications
health impact assessment
Health in All Policies
health inequalities
health literacy
human rights
illicit drugs
injuries
legal issues
marriage equality
Media Doctor Australia
media-related issues
nanny state
National Preventive Health Agency
obesity
occupational health
physical activity
plain packaging
prevention
public health
public interest journalism
road safety
sport
sugar tax
tobacco control
transport
vaccination
violence
Web 2.0
weight loss products
Royal Commission
Social determinants of health
discrimination
education
housing
justice
Justice Reinvestment
NBN
Newstart
poverty
racism
social policy
Summer reading 2020-2021
Tasmanian election 2021
Testing Croakey News category 1
The Croakey Archives
#cripcroakey
#HealthEquity16
#HealthMatters
#IHMayDay (all years)
#IHMayDay 2014
#IHMayDay15
#IHMayday16
#IHMayDay17
#IHMayDay18
#LoveRural 2014
Croakey Conference News Service 2013 – 2019
2013 conferences
Australian Centre for Health Services Innovation Forum 2013
Australian Health Promotion Association Conference 2013
Closing the Credibility Gap 2013
CRANAplus Conference 2013
FASD Conference 2013
Health Workforce Australia 2013
International Health Literacy Network Conference 2013
NACCHO Summit 2013
National Rural Health Conference 2013
Oceania EcoHealth Symposium 2013
PHAA conference 2013
2014 conferences
#IPCHIV14
AIDA Conference 2014
Congress Lowitja 2014
CRANAplus conference 2014
Cultural Solutions - Healing Foundation forum 2014
Lowitja Institute Continuous Quality Improvement conference 2014
National Suicide Prevention Conference 2014
Racism and children/youth health symposium 2014
Rural & Remote Health Scientific Symposium 2014
2015 conferences
#CPHCEforum
#CRANAplus15
#HSR15
#NRHC15
#OTCC15
Population Health Congress 2015
2016 conferences
#AHHAsim16
#AHMRC16
#ANROWS2016
#ATSISPEP
#AusCanIndigenousWellness
#cphce2016
#CPHCEforum16
#CRANAplus2016
#IAMRA2016
#LowitjaConf2016
#PreventObesity16
#TowardsRecovery
#VMIAC16
#WearablesCEH
#W