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Want to find out about chronic fatigue syndrome? Or support stories about Indigenous health?

If you would like to find out what it is like to live with chronic fatigue syndrome (and support a little experiment in community-funded journalism), please have a look at this story pitch on YouCommNews.

YouCommNews is a non-profit, people-powered news site run as part of the Public Interest Journalism Foundation (PIJ Foundation) based at Swinburne University of Technology, Melbourne. (Declaration: I’m secretary of the PIJ Foundation).

Journalist Toula Mantis plans to do a series of 10 personal stories about the experiences of people with CFS. “This series gives a voice to those haunted by a chronic disease that medical professionals are at a loss to explain and have no answers for a cure,” she says.

So far, 15 people have donated a total of $708 towards the first story in the series, which will be about Katherine McIntosh who lives between a tent and a caravan in country Victoria. Mantis needs to raise only another $170 to be able to kick off her series.  (More on her bio is at the bottom of this post).

Meanwhile, YouCommNews has attracted some interesting pitches for stories related to Indigenous health that are looking for journalists.

Learning from the Elders

We hear plenty about the reduced life expectancy and poor health of Indigenous Australians. We don’t hear enough about those Aboriginal and Torres Strait Islander people who lead long and healthy lives. What can we learn from the stories of Indigenous people who have “defied the odds” to reach a healthy, old age?

***

Revealing the neglect of Indigenous people with cancer

The prevalence of cancer among the Indigenous population is largely overlooked in the policies and strategies to improve Indigenous health.  This article would investigate why cancer is so neglected in Indigenous health policies, and would also investigate the solutions. How can the health system be made more responsive to the needs of Aboriginal and Torres Strait Islander people with cancer?

***

Both of these stories have been pitched by Daniel Vujcich,  a graduate of the University of Western Australia, who is currently on a Rhodes Scholarship to the University of Oxford where he has completed a Master’s degree in International Development, and now reads for a doctorate in Public Health.  His research relates to the way in which Indigenous Australian health policies are formulated.

If you are a journalist and are interested in taking on either of these stories (whether as print, broadcast or multimedia stories), please contact the PIJ Foundation’s project officer, Tara Peck:  TPECKATgroupwise.swin.edu.au

***

Some details about Toula Mantis

I have worked as a journalist since the late 1980s specialising in science, information technologies and telecommunications. By 1994, I was privileged to be the media manager for the Australian Telecommunications User’s Group and responsible for the public launch of the Internet in Australia. Shortly afterwards, I was fortunate to be the value added services product manager for Vodafone Australia where I was responsible for the management of the development and launch of the world’s first GSM mobile Internet service. These two events catapulted my career until I returned from a business trip to the Philippines. My health began to deteriorate and I found myself fighting for my life. I was diagnosed with Chronic Fatigue Syndrome (CFS).

From this experience, I became acquainted with the Chronic Fatigue Syndrome Society of Australia (Victoria) and its many members and have been astounded at the stories they had to tell – stories that resembled those from underprivileged third world countries rather than those associated with our lucky country, Australia.

Further, as a CFS sufferer, I was able to experience the medical health system and the medical legal system first hand. It left me aghast.

In 2007, I was privileged to make a request for a CFS specialist medical and recovery centre on behalf of sufferers to the Victorian Health Minister, Daniel Andrews. Several months later, it resulted in a house being given to one of the sufferers due to their appalling individual circumstances. The request for the centre remains.

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#CroakeyLIVE #DigitalNationBuilding
#CroakeyLIVE #VoiceForHealth
#PHAAThinkTank2023
The Health Wrap
ICYMI
@WePublicHealth
@WePublicHealth2023
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Croakey longreads
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CroakeyEXPLORE
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Mapping CroakeyGo
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Croakey Funding Drive June 2024
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The Croakey Archives
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#LoveRural 2014
Croakey Conference News Service 2013 – 2023
2023 Conferences
#GreenHealthForum23
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Our Democracy Forum
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2022 Conferences
#16nrhc
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#RTP22
GiantSteps22
Equally Well 2022 Symposium
Choosing Wisely National Meeting 2022
2021 conferences
#21OPCC
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#HealthClimateSolutions21
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#ShiftingGearsSummit
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#WCepi2021
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2020 conferences
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2019 Conferences
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#EquallyWellAust
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#LowitjaConf2019
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#NNF2019
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#RANZCOG19
#RANZCP2019
#ruralhealthconf
#VMIAC2019
#WHOcollabAHPRA
2018 conferences
#6rrhss
#ACEM18
#AHPA2018
#ATSISPC18
#CPHCE
#MHED18
#NDISMentalHealth
#Nurseforce
#OKToAsk2018
#RANZCOG18
#ResearchIntoPolicy
#VHAawards
#VMIACAwards18
#WISPC18
2017 conferences
#17APCC
#ACEM17
#AIDAconf2017
#BTH20
#CATSINaM17
#ClimateHealthStrategy
#IAHAConf17
#IDS17
#LBQWHC17
#LivingOurWay
#OKtoAskAu
#OTCC2017
#ResearchTranslation17
#TheMHS2017
#VMIACConf17
#WCPH2017
Australian Palliative Care Conference
2016 conferences
#AHHAsim16
#AHMRC16
#ANROWS2016
#ATSISPEP
#AusCanIndigenousWellness
#cphce2016
#CPHCEforum16
#CRANAplus2016
#IAMRA2016
#LowitjaConf2016
#PreventObesity16
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#VMIAC16
#WearablesCEH
#WICC2016
2015 conferences
#CPHCEforum
#CRANAplus15
#HSR15
#NRHC15
#OTCC15
Population Health Congress 2015
2014 conferences
#IPCHIV14
AIDA Conference 2014
Congress Lowitja 2014
CRANAplus conference 2014
Cultural Solutions - Healing Foundation forum 2014
Lowitja Institute Continuous Quality Improvement conference 2014
National Suicide Prevention Conference 2014
Racism and children/youth health symposium 2014
Rural & Remote Health Scientific Symposium 2014
2013 conferences
Australian Centre for Health Services Innovation Forum 2013
Australian Health Promotion Association Conference 2013
Closing the Credibility Gap 2013
CRANAplus Conference 2013
FASD Conference 2013
Health Workforce Australia 2013
International Health Literacy Network Conference 2013
NACCHO Summit 2013
National Rural Health Conference 2013
Oceania EcoHealth Symposium 2013
PHAA conference 2013
Croakey Professional Services archive
#CommunityControl
#CommunityControl Twitter Festival
#COVIDthinktank21
Healthdirect Australia series 2019
Lowitja Indigenous knowledge translation series
Croakey projects archive
#PHAAThinkTank 2022
Summer reading 2022-2023
#CommunityMatters
#CroakeyFundingDrive 2022
#CroakeyLIVE #Budget2021Health
#CroakeyLIVE #USvotesHealth
#CroakeyLIVE Federal election 2022
#CroakeyYOUTH
#HousingJusticeAus
#IndigenousHealthSummit
#IndigenousNCDs
#JustClimate
#JustJustice
#LookingLocal
#OutOfPocket
#OutOfTheBox
#RuralHealthJustice
#TalkingTeeth
@WePublicHealth2022
@WePublicHealth2021
@WePublicHealth2020
AroundTheTraps
Croakey register of influence
Croakey Register of Influencers in Public Health
Croakey Register of Unreleased Documents
Gavin Mooney
Inside Story
Journal Watch
Naked Doctor
Poems of Public Health
Summer reading 2021-2022
Summer reading 2020-2021
Summer Reading 2019-2020
Summer Reading 2017-2018
Summer Reading 2016-2017
The Koori Woman
TOO MUCH of a Good Thing
Wonky Health
CroakeyGO archive 2017 – 2018
CroakeyGo 2018
#CroakeyGO #QuantumWords 2018
#CroakeyGO #VicVotes 2018
#CroakeyGO Albury 2018
#CroakeyGO Callan Park 2018
#CroakeyGO Carnarvon 2018
#CroakeyGO Marrickville 2018
#CroakeyGO Palm Island 2018
CroakeyGo 2017
#CroakeyGO Adelaide 2017
#CroakeyGO Melbourne 2017
#CroakeyGO Newcastle 2017
#CroakeyGO Sydney 2017
Elections and Budgets 2013 – 2021
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Budget2020Health
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#AusVotesHealth Twitter Festival 2019
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Federal Election 2019
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NT Election 2016
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Qld Election 2015
NSW Election 2015
Federal Budget 2014-15
Victorian Election 2014
Federal Budget 2013-14
Federal Election 2013
Federal Budget 2012-2013
Federal Budget 2011
Federal Budget 2010
Federal Election 2010
Federal Budget 2009-2010

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